The KBG Foundation was our March 2022 Jean Day Donation recipient.  The donation was inspired by a local Princeton family, whose son recently shared their journey with the Shaw Local News network, Ryne Chlum.

You can read that story here:  https://www.shawlocal.com/bureau-county-republican/news/local/2021/09/29/princeton-family-shares-about-their-journey-with-sons-rare-genetic-disorder/

The KBG Foundation was founded in June 2015.

WHAT IS KBG SYNDROME?

KBG syndrome is a rare autsomal dominant condition that is present at birth. If one parent has it, chances are 50/50 of any offspring also having the condition. Over 400 people worldwide have been diagnosed with this condition and many more are being diagnosed each year.  June 11th, 2022 is International KBG Awareness Day.  You may donate to this organization at this link on their website:  https://www.paypal.com/donate/?hosted_button_id=K5MEUPPPLBQBA

 Contact:

Email: 

Instagram:  @KBGfdn
Twitter:    https://twitter.com/KBGFdn
LinkedIn:  https://www.linkedin.com/company/10515292/admin/
YouTube: https://www.youtube.com/kbgfoundation

Call: 815-224-3126
Office Hours: 8:30 am to 4:30 pm M-F

If you are looking to support this organization,  visit their website at https://kbgfoundation.com/  for more information on their services.

If you are a local 501c3 not-for-profit business in the service area for Connecting Point Computer Center and IVNet, search #CpointccGivesBack.  

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Published: May 16, 2022

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